Skip to main content

Advertisement

Table 1 Evidence of Barriers to Being & the Unenacted Rights of People with Albinism (relevant Article in parentheses)

From: Children with albinism in African regions: their rights to ‘being’ and ‘doing’

Barriers to being Rights afforded under the UNCRC (1989) Rights afforded under the UNCRPD (2006)
Exposure to/fear of violent assault, abduction & murder ➢ Right to life, survive & develop (6) ➢ Protection from violence, abuse & neglect (19). ➢ Governments must protect children from being abducted, sold or moved illegally for the purpose of exploitation (35). ➢ Children who have experienced abuses must receive support to help them recover (39). ➢ Right to live (10). ➢ Governments must take all necessary measures to ensure the protection & safety of people with disabilities in situations of risk (11). ➢ Right to freedom from exploitation, violence & abuse (16).
Effects of discrimination & stigmatisation ➢ Right to live full & decent lives with dignity & as far as possible, independence & to play an active role in their community (23). ➢ Right to equality & non-discrimination & equal protection & benefit of the law (5). ➢ Governments must raise awareness of the capabilities of disabled people & challenge discrimination & prejudice (8). ➢ Right to live independently in & be included in the community 19).
Effects of segregation from family &/or community & lack of freedom of movement ➢ If a child is place away from home for the purposes of protection they have the right to regular review of their care & circumstances (25). ➢ Right to access all aspects of society on an equal basis (9). Right to liberty & security of person (14).
Impact on family life & friendships ➢ Children must not be separated from parents against their will unless it is in their best interests (9). ➢ Children with disabilities have equal rights to family life and to prevent concealment, abandonment, neglect and segregation (23)
Inadequate health protection & health support ➢ Governments must provide good quality health care & education on health & wellbeing (22). ➢ Right to highest attainable standard of health without discrimination (25).
Inadequate health information on the causes & effects of albinism ➢ Right to reliable information from a range of sources (17).  
Lack of access to justice & few convictions of perpetrators of violence   ➢ People with disabilities should have effective access to justice (13).
Lack of voice on issues affecting children with albinism ➢ Right to express their views, feelings & wishes in all matters affecting them & to have their views considered & taken seriously (12). ➢ Right to express their views on all matters affecting them (7). ➢ Right to express themselves & access information (21).