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Table 1 Evidence of Barriers to Being & the Unenacted Rights of People with Albinism (relevant Article in parentheses)

From: Children with albinism in African regions: their rights to ‘being’ and ‘doing’

Barriers to being

Rights afforded under the UNCRC (1989)

Rights afforded under the UNCRPD (2006)

Exposure to/fear of violent assault, abduction & murder

➢ Right to life, survive & develop (6)

➢ Protection from violence, abuse & neglect (19).

➢ Governments must protect children from being abducted, sold or moved illegally for the purpose of exploitation (35).

➢ Children who have experienced abuses must receive support to help them recover (39).

➢ Right to live (10).

➢ Governments must take all necessary measures to ensure the protection & safety of people with disabilities in situations of risk (11).

➢ Right to freedom from exploitation, violence & abuse (16).

Effects of discrimination & stigmatisation

➢ Right to live full & decent lives with dignity & as far as possible, independence & to play an active role in their community (23).

➢ Right to equality & non-discrimination & equal protection & benefit of the law (5).

➢ Governments must raise awareness of the capabilities of disabled people & challenge discrimination & prejudice (8).

➢ Right to live independently in & be included in the community 19).

Effects of segregation from family &/or community & lack of freedom of movement

➢ If a child is place away from home for the purposes of protection they have the right to regular review of their care & circumstances (25).

➢ Right to access all aspects of society on an equal basis (9).

Right to liberty & security of person (14).

Impact on family life & friendships

➢ Children must not be separated from parents against their will unless it is in their best interests (9).

➢ Children with disabilities have equal rights to family life and to prevent concealment, abandonment, neglect and segregation (23)

Inadequate health protection & health support

➢ Governments must provide good quality health care & education on health & wellbeing (22).

➢ Right to highest attainable standard of health without discrimination (25).

Inadequate health information on the causes & effects of albinism

➢ Right to reliable information from a range of sources (17).

 

Lack of access to justice & few convictions of perpetrators of violence

 

➢ People with disabilities should have effective access to justice (13).

Lack of voice on issues affecting children with albinism

➢ Right to express their views, feelings & wishes in all matters affecting them & to have their views considered & taken seriously (12).

➢ Right to express their views on all matters affecting them (7).

➢ Right to express themselves & access information (21).