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Table 2 Burden vs Agency construct: Inability-Ability

From: Persons with disabilities as experts-by experience: using personal narratives to affect community attitudes in Kilifi, Kenya

Burden Agency
Inability ‘She is totally disabled…. he is the kind of a disabled person who is paralyzed, she spills saliva.’ [CHW1–1]
‘if the child is not moved to another place then he will remain at the same position.’ [CHW2–1]
‘the child is not able to do anything. The child cannot even eat.’ (CHW4–1]
‘you call him and he just looks at you. … he can’t say any word. He just hmmms ‘mmm mmmm’ that how he talks.’ [WG2–1]
‘… he is not normal you can put him in the same category with the mad people.’ [CHW2–1]
‘a disabled person is one who is not complete others lack parts of the body due to stroke’ [CHW6–1]
‘… he is blind and when he goes to the garden he can dig and also fetch water with the other children.’ [CHW10–1]
“When he is hungry he will give you a sign. He will wait until you are looking at him then he will show (gestures eating with his hand), then you will know that he wants to eat” [CHW3–1]
‘F- said he went to school to class eight, he trained in a profession, and he was employed.’ [CHW5–2]
‘…regardless of the disability, people with disabilities can learn in school.’ [CHW6–2]
‘They have abilities, though not as the others but they have abilities.’
‘They know how to work. When they ask for a job, don’t look at his disability. Look at his abilities; look at what he can do.’ [WG7–2]
  1. 1 = pre-intervention; − 2 = post-intervention