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Table 3 Burden vs Agency construct: Hopelessness-Opportunity

From: Persons with disabilities as experts-by experience: using personal narratives to affect community attitudes in Kilifi, Kenya

Burden Agency
Hopelessness ‘…she was thrown away. …’ [CHW2–1] ‘…she would put her near the fire so that she can die faster because she was tired of the work.’ [CHW1–1] ‘the parent usually has lost all hope regarding the child.’ [CHW7–1] ‘… without that (sponsors) they are just left alone like how we see them.’ [CHW7–1] ‘So what can we do, we are not able to help him. People don’t like him.’ [WG1–1] ‘… the child had jiggers (parasitic infestation of fleas) on her hands … she had to move from one place to the other using her bottom. She stayed with the jiggers in her hands without being treated and she eventually died because of that.’ [CHW2–1] ‘We look for people to help the child so that she can feel that she is in the world.’ [WG4–1] ‘He will say what he wants and that he feels he needs a wife. So a wife should be found for him to marry. ‘You will have done justice to him’ [CHW7–2] ‘… we have to be close to them so that we can understand them so that we can address their needs.’ [CHW1–2] ‘…educate them so that they can have education. …. they can cater for their future lives.’ [WG7–2] ‘If I have some work, like that young man who kept poultry, I can call him and give him the job.’ [WG3–2] ‘We have to know about their health, their wellbeing… If he is sick……. if he can be carried should be taken to a doctor.’ [CHW1–2] ‘…. a person with a disability. We could take him to the meeting and he explains what he goes through in his life…they will see and hear what he has gone through.’ [WG5–2] Opportunity